Today we met with the Immunologist Dr. Pacheco. We got excellent news. All of Rowan’s Tcells are in the normal range! She was very happy about this. We go back for another check in 6 months.
We also had an appointment with the Feeding clinic. My impression is that their job is to make sure Rowan is growing appropriately. I, of course, am really anxious to get Rowan feeding orally. So, an appointment has been set up in January with the ENT doc who examined Rowan’s vocal cords in the hospital. Hopefully he clears her for another Barium Swallow and THEN she gets cleared to start mouth feeds. Keeping my fingers crossed!
On her six week birthday, my peanut is finally home! We spent the night at the Ronald McDonald house. I had her all to myself. It was awesome..even if she did cry all night. She’s home, right where she belongs.
Rowan Emilia was born on September 19, 2008 at 1:44pm weighing 7lbs 9oz. When she was one day old she was diagnosed with Congenital Heart Disease. She had an Interrupted Aortic Arch, a Atrial Septal Defect, and a Ventricular Septal Defect. She had open heart surgery on September 27, 2008. Rowan had a fundoplication and a g-button placed two weeks later. She was diagnosed with 22q11.2 deletion (aka “DiGeorge”) syndrome.
Rowan came home on Halloween 2008 and we’ve been having lots of fun getting to know each other. We’re now well past recovery from surgery, and focused on feeding and physical therapy. She’s grown quite a bit and has quite a little personality. She photographs well too. Check the updates for progress!
