RowanEmilia.com

Rowan Emilia was born on September 19, 2008 at 1:44pm weighing 7lbs 9oz. When she was one day old she was diagnosed with Congenital Heart Disease. She had an Interrupted Aortic Arch, a Atrial Septal Defect, and a Ventricular Septal Defect. She had open heart surgery on September 27, 2008. Rowan had a fundoplication and a g-button placed two weeks later. She was diagnosed with 22q11.2 deletion (aka “DiGeorge”) syndrome.

Rowan came home on Halloween 2008 and we’ve been having lots of fun getting to know each other.  We’re now well past recovery from surgery, and focused on feeding and physical therapy.  She’s grown quite a bit and has quite a little personality.  She photographs well too.  Check the updates for progress!