Rowan had her first Christmas and I think she enjoyed it. We spent Christmas Eve at Ryan’s Aunt Julie and Uncle Scott’s house then had Christmas Day at Nana and Grandy’s (Ryan’s mom and dad..still getting used to the new names). No picture with Santa this year, but next year for sure!
Rowan had her evaluation with Early Childhood Intervention today. ECI is a state program for kids with developmental issues. They offer a wide range of services including physical, speech, cognitive, and occupational therapy. Since DiGeorge kids usually have developmental delays, getting Rowan in therapy is important. Anyway, the results are in : Rowan is progressing normally! She is on track with everything she’s supposed to be doing: communicating, tracking, and development of her motor skills. The only thing she is “behind” on is feeding, which is hardly a shock. So Rowan will be receiving her Speech and Occupational therapy for feeding. I’m so relieved that she’s developing normally!
The Endocrinology fellow called. Rowan’s Vitamin D is great. Her phosphorus is a little high so we’re going to watch that. Her Parathyroid hormone is a little low, but the important thing is that she’s making it. His only advice is to try to give Rowan as much breastmilk as possible since it’s low in phosporus. I told him I’d work on it.